Friday, June 20, 2008

A good day

Yesterday we got up early and were at the Arrington clinic at 8 A.M. After lab work, John was hooked up to the machine that would administer these toxic drugs. He was there for a total of 7 hours, he slept much of the time. I left for a couple of hours to run a few errands. We came home around three. Allison was here to help me sort out all of these new meds meant to help manage side effects. So far, not bad. On day 2 last time he had chemo he was ready to be hospitalized. That is not the case now. He even went to the grocery store by himself today! I didn't think it was a great idea because he would be exposed to lots of other people but he really wanted to do something on his own.

With all of the new medications to manage the side effects, John is doing amazingly well. There is no question that he is very tired and takes lots of long naps but he is not deathly ill. I am sure that the feeding tube is a big part of it. He is running a low grade fever and we are managing that with tylenol.

This afternoon my very dear friend, Johnanne Reynolds and her sister Jan Kireilis arrived at the house with good food!! They made a wonderful salad for me with spinach, strawberries and almond with a delicious dressing. I will have several meals from that. They also brought a couple of huge casseroles that both of us will enjoy. And brownies! Since Charles and his girls will be here tomorrow, having this food takes a lot of worry off my shoulders. It also give us some good nutrition. Thank you so very much Johnanne and Jan. I know you looked at this deed as not a big deal but it is a VERY big deal to us! Our days are so busy just taking care of things around the house and nursing John that it is sometimes a BIG deal to go into town.

Again, we are so relieved to be at home. We are so grateful for all of the wonderful and thoughtful friends. The emails, calls and visits are very helpful.

I am very happy to be reporting a good day.

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